Share your experiences by joining our Patient Engagement Forum.Working with others
We listen to, and learn from, those with an interest in what we do and speak to them before making key decisions. One of the ways we do this is through regular engagement with different stakeholders – learn more about each of them on this page.
Patient Engagement Forum (PEF)
The Patient Engagement Forum is made up of a pool of people, including patients, partners, surrogates, intended parents, donor-conceived people over the age of 18 and parents of donor-conceived people, whose views and experiences will help to shape our work and the information we produce.
The group is involved in several activities such as snap polls, interviews, and focus groups.
If you would like to find out more about how you can join the PEF, click here.
Patient Organisation Stakeholder Group (POSG)
The Patient Organisation Stakeholder Group (POSG), previously known as AFPO (the Association of Fertility Patient Organisations), is made up of individuals who represent an established patient group, community, or charity. Members may also consider themselves a key voice who work closely with a specific patient group or who speak on behalf of patients.
The group meet twice a year - autumn/winter and spring/summer.
The organisations represented on the group are:
- Brilliant Beginnings
- Chana
- Cysters
- Donor Conceived UK (DCUK)
- Donor Conception Network (DCN)
- Endometriosis UK
- Fertility Network UK (FNUK)
- IVF Babble
- LGBT Mummies
- Multiple Births Foundation
- My Surrogacy Journey
- Nappy Endings
- Paths to Parenthub
- Progress Educational Trust (PET)
- Surrogacy UK
- Testhim
- The Fertility Alliance
- The Fertility Podcast
- TTC Support UK, Yorkshire Fertility Support Group
- Two Dads UK
- Verity
- Your Fertility Journey
Licensed Centres Panel
The panel includes 32 staff from fertility clinics and human embryo research centres across the UK, including doctors, nurses, managers, counsellors, scientists and researchers.
We meet with them three times a year to bounce ideas off one another, get their thoughts on our current thinking, share experiences and work together to make improvements.
Professional Stakeholder Group (PSG)
This group brings together representatives from professional groups across the fertility sector twice a year (autumn/winter and spring/summer), including:
Review date: 31 October 2026
